Bereaved But Still Me

Addressing an Emerging Need: The Autism and Grief Project

Dr. Ken Doka, Amy Tucci, Alex LaMorie Season 8 Episode 7

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Guests: 

  • Dr. Ken Doka, Senior Vice President of Grief Programs at the Hospice Foundation of America
  • Amy Tucci, President and CEO of the Hospice Foundation of America 
  • Alex LaMorie Advisory Board Member of the Autism and Grief Project

Overview of the Autism and Grief Project:

  • Website launched in September 2022 to provide grief resources for autistic adults, their families, and professionals
  • Features testimonials, social stories, animations, and information on death and non-death losses
  • Goals are to help autistic individuals navigate complex emotions and contextualize grief

Importance of addressing autism and grief: 

  • Emerging area of focus as more autistic individuals reach adulthood
  • Opportunity to expand understanding of diversity in grief experiences

Benefits of the project:

  • Provides support and validation for those grieving personal losses
  • Establishes baseline understanding while respecting the uniqueness of each experience
  • Spreads awareness of available resources for the autism community

Link mentioned in the episode: https://www.autismandgrief.org/

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